Inclusive Data Gathering

What is the problem that needs to be addressed? Please describe how it is related to mental health.
Vital development statistics for Orange County highlighted in the Orange County Community Indicators annual report (http://www.ocgov.com/about/infooc/facts/indicators) or the Center for Health Statistics and Informatics County Health Status Profiles (https://www.cdph.ca.gov/Programs/CHSI/Pages/County-Health-Status-Profiles.aspx) both are missing vital development statistics important for the homeless/mentally ill demographic.

Why is this a concern for Orange County? What can Orange County and other counties learn from this project?
The current trend in healthcare spending cannot be supported via the current process and cannot be shown to be effective via the current process.

What is currently being done to resolve this problem in our county and throughout the United States? If applicable: Is it working; why or why not?
The Eight America’s Study (https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.0030260) from 2006 demonstrated how variance is hidden in typical reports of life expectancy.

What is new or different about this project idea? Please describe how this differs from what is already being done (Question 6). Please list any research that was done on this topic.
It is novel for an underreported/underrepresented/vulnerable population to ask for inclusion in the planning process by asking for a change in how statistics are gathered. This project proposal shares goals with Informed Consent, Mental Health Event Reporting System and Improving Patient Care. The safe harbors provision of Informed Consent is probably a prerequisite for any of the above choices for the basic reason of minimizing future litigation costs and maximizing stakeholder buy-in. Informed Consent’s intention is to utilize currently held information for learning/improving. Part of Improving Patient Care is to stop the partitioning/fractionating of data due to the large distribution of patient care across numerous healthcare referral networks. The Mental Health Event Reporting System is to crowdsource/public source events considered significant enough to lead to a dramatic decrease in health/safety/security/life-expectancy. Finally, this project is to obtain data-driven healthcare planning that captures the hidden variance known to exist.

What is the project idea? Please describe how this project will operate.
Like the other informatics project proposals, this is a platform that is not unique in healthcare but utilized to learn about mental illness/mental health. How to capture data to remove the variance and expose the underlying meaning is the ultimate goal.

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July 8, 2019

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